Time to Fly 2012

Christie Zink.... 

http://irefuse2012.eventbrite.com/

Order your "I Refuse" kit and this will also be grant matched.......


http://support.childrenscancer.org/site/TR/Events/TimetoFly?px=1506172&pg=personal&fr_id=1190

Due to a generous grant from EBMRF and JGSF, every dollar raised for this event will be matched dollar for dollar and 100 percent goes to Dr. tolar' research!

As many of you know Epidermolysis Bullosa is something I have become somewhat passionate about. Not only do I try to be a proactive advocate, I am also very committed to raising awareness and helping any efforts to find a cure. This summer I have an opportunity to be a part of an event that will allow me to raise money for the research team in Minnesota.

PUCK (a parent driven initiative of Children's Caner Research Fund) was started and is run by parents whose daughters both suffered from Epidermolysis Bullosa, a devastating genetic skin disorder. Sarah died shortly before receiving her bone marrow transplant.

I will be walking to honor the memory of Tripp & Bella and also sweet Quinn who just lost her fight with EB on April 7, 2012. I hope that you will help me raise money for Pioneering Unique Cures for Kids (PUCK) and the research team at the University of Minnesota as I participate in this year's Time to Fly event on Harriet Island in St. Paul.

Your donation can make a tremendous impact in to those who suffer the devastating reality of EB.
And the wonderful thing is we recently received news that because of a grant that was received, all donations  made will be matched dollar for dollar.  That means that your donation will be doubled!
Thank you so much for your support and your dadication to helping in this fight against EB

Team Puck 

It's Time to Fly!

On June 30 Team PUCK is joining the race against rare diseases like Epidermolysis Bullosa by participating in Time to Fly 2012 at Harriet Island Regional Park in St. Paul, Minnesota, which benefits Pioneering Unique Cures for Kids (PUCK).

Pioneering Unique Cures for Kids (PUCK)  invests in bold research that leads to life-saving treatments  for children who suffer from Epidermolysis Bullosa. We want to help raise money for this important cause.

Will you help us reach the finish line? Please make a donation or join in on the fun on June 30. Together, our support can help bring life-saving treatments to the children who suffer from this horrible disease, Epidermolysis Bullosa.

Whatever you can give will help - it all adds up!  We greatly appreciate your support and will keep you posted on our progress as we fight for these children. 

To learn more about Pioneering Unique Cures for Kids please visit www.puckfund.org.

Posted by Christie a little while ago.....

I am just so incredibly overwhelmed by the outpouring of support that was given to Sharee Kinchen Wells who just helped me with an AMAZING fundraiser. I am totally speechless. Because of her dedication, she has helped raise $1942.72 for Pioneering Unique Cures for Kids (PUCK) and the Time to Fly Event. She has also just informed me that she has one extra surprise that can potentially put that donation over $2000! Keeping in mind that all donations are being matched due to the challenge grant, that means over $4000 will go to the research that is being done at the the U of M and Dr. Tolar. This is so incredible. With this donation, my fundraising efforts will be at almost $7000. My original goal was $2500!! Now I am eager to try to get to $10,000, which would mean $20,000! Will you help?

http://support.childrenscancer.org/site/TR? 

5k Walk... 
 
I forgot to mention that Team PUCK raised more money than any other team. Of course everything raised is being matched and that means that more fun $50,000 will be going to Dr. Tolar and his research!!

Finished in 36 minutes...took first place for fundraising, finally got to meet some of my amazing online family, got to see some good friends and got to meet Dr. Tolar. I would say it was a pretty good day!!

 Well done to all who joined in.......