Harry & Cody Churchill are two beautiful little boys that are very close to my heart and always will be. Harry was born 26th April 2009 and Cody was born 22nd June 2011. Both boys born with Junctional Epidermolysis Bullosa Herlitz (JEB-H) to amazing parents Steph Green & Chris Churchill.
The world has watched these babies grow into beautiful toddlers...
Harry Cody
Doctors braced the family for the boys never seeing their 1st birthday since they have the most fatal type of Epidermolysis Bullosa (eb). But these boys were not taking anything lay down, beating all the odds thrown at them.
Harry had to have an emergency trachea fitted when he contracted chicken pox as a baby but he continued his battle and then Cody also had to have a trachea when he got sick. Their parents just got on with the 24 hour care of their son's without a whinge or moan. Hospital stays were long but they never gave up fighting for them. Stealing the hearts of thousands around the world and bringing every ounce of joy & laughter to their family & friends...
Then the devastating news was posted on Facebook which stopped my heartbeat and my breathe...
"As we all know Harry and Cody had a bond like no other but i don't think anyone really understood the bond they had! On the 13th march after long, hard fight Harry passed away peacefully at his favorite place Julia's house and as hard as it was we then had to go back to hospital as Cody had fallen ill. On the 15th march Cody flew to heaven to be with his big brother! Loosing two children in two days is anyone's worse nightmare, the only comfort we have is knowing they are reunited as one! Cody couldn't live with out harry their bond was far too strong
♥ Love u always boys ♥ Mummy and Daddy x"
The sad news shocked the whole EB community, friends and family members alike. Messages pouring in for Steph, Chris, Natasha and the whole family from around the world.... "Beautiful angels, Inspirational & Too special for this world" were some words used to describe these gorgeous little boys.
Newspapers wrote moving stories in tribute:
http://www.bournemouthecho.co.uk/news/10295657.Tributes_paid_to_inspirational__butterfly_children__who_died_within_two_days_of_each_other/
http://www.huffingtonpost.co.uk/2013/03/18/butterfly-brothers-harry-cody-churchill-die-eb_n_2900649.html
http://www.bbc.co.uk/news/uk-england-dorset-21916750
A fund raiser is in place to assist the family with the additional funeral costs like Flowers, Plot & Headstone:
http://www.facebook.com/pages/Harry-Cody-Churchill/448878525185442"On behalf of the whole family, I would like to thank everyone for being here to support them at this terribly sad time. A huge thank you goes to the funeral directors for everything they are doing for the boys to ensure they are laid to sleep peacefully. And thank you from the bottom of my heart to each person who has donated, shared this page and/or left the most touching comments i have ever read for Steph, Chris, Harry, Cody & the family.
These boys sure were loved by all...
If you still wish to donate then use Paypal with: olivia_leigh@msn.com
(You don't need an account)
Many many thanks, love to all xxxx"
Keep the whole family in your thoughts as they say good night to Harry & Cody on Wednesday 27th March 2013 in a celebration of their lives.
Much love to you all
2 comments:
Just leaving a very special hug for this whole family. We are thinking about you all and though there are no words to make this easier I will say that I pray that you will have peace in your hearts knowing that your boys are together and watching over each other and your entire family. Wishing you the very best and I will be looking toward the sky on Wed. to let the boys know that we are thinking of them. Love, Tammy, Steve, Chloe and Liam
i was fortunate enough to meet Steph Chris Harry and Cody recently after hearing so much about them through various people, one being my daughter who photographed the family recently. i was totally inspired by the boys Harry had such a great sense of humour and proudly showed me his new wheelchair and how he could drive it . Cody getting his mum to feed him buttons , such lovely children . i feel honoured to have met them . my heart goes out to Chris and Steph at this sad time . sending you love xx
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