we petition the Obama administration to:
`Free wound care supplies for all Epidermolysis Bullosa - EB patients in the United States.Epidermolysis Bullosa or Eb is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. The risk of infection is so great that most severe cases have to completely bandage from neck to toe. The worst forms of EB lead to eventual disfigurement, disability and often early death.
The only treatment for EB is daily wound care and bandaging. The daily routine is a grueling, multi-faceted daily regimen lasting up to 4 hours in more severe patients. As part of your "Obamacare" Bill, it was stated "One of the main goals of ObamaCare is to ensure that all preventative care will be free on all insurance plans. These bandages we are requesting for free are exactly that, Preventative care.
Please sign, share and HELP make this happen..... This would be HUGE for our families
I will be writing in support of this petition, for anyone who wishes to also do so:
The White House
1600 Pennsylvania Avenue NW
Washington, DC 20500
Be sure to write the link to THIS petition on it.....