~ You never know how strong you are until being strong is the only choice you haveWelcome each and every one of you to The Butterfly Network Here 2 Help. Its been over a year in the making & planning. The Butterfly Network Here 2 Help is an unregistered support foundation with plans for charity status in the future. We can't put into words how it feels to have finally made our launch and to be helping in what we feel are the right places.
The Butterfly Network is dedicated to assist in supporting people affected by Epidermolysis Bullosa (EB) around the globe. Our goal is to assist with wound care and other EB related items for those in need.
The Butterfly Network works with Clarity, Honesty and with Love.
Raising awareness for Epidermolysis Bullosa (EB) around the world with intentions of gaining local community support for families in need. Offering support on many levels to those with/or caring for Epidermolysis Bullosa (EB). Sharing wound care supplies and knowledge to use, that are donated to The Butterfly Network for people in need. Offering knowledge of what & how to use local supplies for best wound care practice. Heading sponsor programs to best assist others with/or caring for Epidermolysis Bullosa (EB).
No one should be left feeling alone with no place to turn or a person to turn to. The world is a HUGE place with many hidden corners, our light is on for those people too! Our Facebook support group is open to anyone who needs us Epidermolysis Bullosa Lounge which is worldwide and now home to over 1300 members from around the world. The Lounge is a place where people come together for advice, support and to just be a part of an amazing community (We do not replace medical advice and if your concerned about someones health issues you should contact your doctor or EB specialist). We have a large number of supporters that are with us to assist where possible.
All are welcome to join.