Meet little Anna Leigh, she has been born with the devastating skin condition Epidermolysis Bullosa (EB). Anna has the worse type ~ Junctional Herlitz (JEB H)
Please open the link and if your able to help with a donation or letters to your congress please do this and fast...Please please please do something, anything!!
You can make a tax deductible donation to help Anna Leigh in her fight against JEB, just visit the following website:
http://patients.transplants.org/faf/donorReg/donorPledge.asp?ievent=485635&supid=353687107
http://www.transplants.org/
As a community we CAN'T lose another baby......We have already laid to rest 5 butterflies in the last 3 months.
#WeNeedACureNow
Anna Leigh's first time wearing clothes
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